Diane Winokur

Patient Advocate ALS
Appointed by the Lt. Governor

As a key advocate in the field of ALS research, Diane has been an active leader nationally and internationally in science and biotechnology and has a keen grasp of the public-private partnership that drives innovation and discovery. Diane has been an active board member of several nationally and internationally renowned organizations.  She served on The ALS Association's National Board of Trustees for five years and is presently an officer on the Golden West Chapter's Board of Directors. She also serves on the boards of the Sanford-Burnham Institute and the Packard Center. Diane and her family helped in founding the ALS Treatment and Research Center at the University of California, San Francisco, a Certified Center of Excellence of The ALS Association.  Her direct experience with ALS inspired her commitment to providing a deeper understanding within the scientific community of the disease and the astonishing role that regenerative medicine holds in the search for effective treatments and cures. Diane's youngest son, Douglas, was diagnosed with ALS in 1995 and passed away in 1997. Her oldest son, Hugh, was diagnosed with ALS in 2005 and passed away in 2010.