Board Member: Diane Winokur
Patient Advocate ALS
Appointed by the Lt. Governor
As a key advocate in the field of ALS research, Diane has been an active leader nationally and internationally in science and technology and has a keen grasp of the public-private partnership that drives innovation and discovery. Diane has been an active board member of several nationally-renowned organizations, She served on the ALS Association’s National Board of Trustees for five years as well as serving as an officer on the Board of the Golden West Chapter of ALSA. She served as a Board member of the Sanford-Burnham Medical Research Institute in La Jolla, California and is currently a Board member of the Packard Center for ALS Research at Johns Hopkins. Diane and her family helped to found the ALS Treatment And Research Center at the University of California, San Francisco, a Certified Center pf Excellence of the ALS Association.
Her direct experience with ALS inspired her commitment to providing a deeper understanding within the scientific community of the disease and the role that regenerative medicine holds in the search for effective treatments and cures. Her youngest son, Douglas, was diagnosed with ALS in 1995 and passed away in 1997. Her eldest son, Hugh, was diagnosed with ALS in 2005 and passed away in 2010.
She received a B.A. from the University of Massachusetts, Amherst and an M. A. from San Francisco State University.