August 7, 2024 – Accessibility and Affordability Working Group Meeting

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MEETING NOTICE AND AGENDA
REGULAR MEETING OF THE
TREATMENT AND CURES ACCESSIBILITY AND AFFORDABILITY WORKING GROUP
OF THE CALIFORNIA INSTITUTE FOR REGENERATIVE MEDICINE
Organized Pursuant To The
CALIFORNIA STEM CELL RESEARCH, TREATMENTS, AND CURES INITIATIVE OF 2020

Date: August 7, 2024
Time: 9 AM to 10:30 AM*
Location: 601 Gateway Blvd., Suite 400
South San Francisco, CA 94080

 

Members of the public may attend this meeting in person at the address printed above or remotely via the options listed below.

 

Public Comment Instructions

Members of the public who are listening to the meeting and wish to make a comment will have the opportunity to do so by doing the following:

• Once we have called for public comment, members of the public will be able to do so by pressing *9 which will place you in a queue to make your comment
• Once we call your name, you may have up to 3 minutes (depending on the number of members of the public wishing to speak) to make your public comment; please remember to be respectful of the time limit.
• Written comments may be sent to the following email address: ecrotti@cirm.ca.gov

 

YouTube:
https://www.youtube.com/cirmtv

Dial-In information:
Dial in number: (386) 347-5053
Meeting ID: 850 5983 4484
Passcode: 795471

Open Session

1. Call to Order
2. Roll Call
3. Patient Access Program Updates
   • Presentation (Updated 8/7/24)
   • NIH Comments
4. Review Strategic Allocation Framework Goal 5 and Potential Recommendations
   • Draft Goal 5 Table (Updated 8/5/24)
   • Letter to the Access and Affordability Working Group (Added 8/5/24)
5. Public Comment
6. Adjournment

 

THE ORDER OF BUSINESS MAY BE CHANGED WITHOUT NOTICE.

**NOTICE**

The California Institute for Regenerative Medicine, its Independent Citizens Oversight Committee, and any subcommittees and working groups thereof, comply with the Americans with Disabilities Act (ADA) by ensuring that the meeting facilities are accessible to persons with disabilities, and providing that this notice and information given to the Members of the Working Group is available to the public in appropriate alternative formats when requested. If you need further assistance, including disability-related modifications or accommodations, you may contact Emily Crotti at the California Institute for Regenerative Medicine at (510) 850-8957 no later than the day prior to the meeting.

Questions or requests for additional information prior to the Independent Citizens’ Oversight Committee meeting may be referred to Emily Crotti at the California Institute for Regenerative Medicine at ecrotti@cirm.ca.gov or (510) 850-8957.

This meeting agenda is also available on the website of the California Institute for Regenerative Medicine at http://www.cirm.ca.gov.

The Working Group may take action on any item listed on this agenda.

*The duration of the meeting is an estimate only. The meeting may continue beyond this estimated time to address the items on this agenda.

 

 

Transcripts

• Accessibility and Affordability Working Group – August 7, 2024 Meeting Transcript [PDF]

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